Hi guys, here is the update from the doc today - thank you for your prayers. I'm off to sleep while I can!! Quickie update:
1. Colton has a narrow airway - he is getting enough air (pulse ox is good) but he has to work much harder to get it. Doc says it is like he is "breathing through a straw".
2. It is very serious and the only treatment left is surgery. HOWEVER, because he is gaining weight now and getting enough oxygen, the risks of surgery outweigh the benefits.
3. This condition should correct itself in about one year. Good news is that it can improve over the course of that year. Bad news is that it can also get worse before it improves.
4. We tried a breathing treatment on Colton but it did not work. Dr. did not think it would work but just wanted to try it in case it did. (this is usually for folks with asthma where the wheezing is on the exhale - Colton gasps on the inhale). I held Colton upright and held this covering over his mouth. It was so big it covered his whole face really. He did not cry, just looked up at me the whole time. My sweet boy. (see picture)
5. There is another breathing treatment but it is made of adrenaline and risky for a baby. He doesn't want to do it unless the ENT specialist thinks it is necessary.
6. He wants us to follow up with the ear, nose and throat specialist again.
7. He wants us to go the occupational therapist (appointment Friday at 3:30pm). She has us adding a teensy bit of rice cereal to his bottles to give it texture and make it easier for him to swallow. He doesn't seem to notice it much.
8. Unfortunately he doesn't think there is much we can do (but he wants us to meet with these other folks so I'm not giving up).
2. It is very serious and the only treatment left is surgery. HOWEVER, because he is gaining weight now and getting enough oxygen, the risks of surgery outweigh the benefits.
3. This condition should correct itself in about one year. Good news is that it can improve over the course of that year. Bad news is that it can also get worse before it improves.
4. We tried a breathing treatment on Colton but it did not work. Dr. did not think it would work but just wanted to try it in case it did. (this is usually for folks with asthma where the wheezing is on the exhale - Colton gasps on the inhale). I held Colton upright and held this covering over his mouth. It was so big it covered his whole face really. He did not cry, just looked up at me the whole time. My sweet boy. (see picture)
5. There is another breathing treatment but it is made of adrenaline and risky for a baby. He doesn't want to do it unless the ENT specialist thinks it is necessary.
6. He wants us to follow up with the ear, nose and throat specialist again.
7. He wants us to go the occupational therapist (appointment Friday at 3:30pm). She has us adding a teensy bit of rice cereal to his bottles to give it texture and make it easier for him to swallow. He doesn't seem to notice it much.
8. Unfortunately he doesn't think there is much we can do (but he wants us to meet with these other folks so I'm not giving up).
3 comments:
Hey Tami!
I have been following your blog as well...and just know that Ben and I are praying for all 3 of you. God is always in control...and mommies always KNOW best!!!
amber
Man, Tami. THis little guy is a champ. I know it is so hard to see him be put through all of this but at the same time I'm glad he is small enough that he won't remember and doesn't really fight it. I'm eager to hear what the ENT said. We are praying for all 3 of you. God is holding you in the palm of your hand. You and Clark are amazing parents, really you are. Love you.
Tam, I have been praying for you three since I read your blog over the weekend. I know it has been a tough few weeks..but GOOD FOR YOU going with your Mommy intuition and insisting on answers.
Love you, my friend. You and Clark are doing an amazing job.
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